Susan was a "twofer". She was diagnosed with both breast and
ovarian cancer on the same day. She chose to work in the ovarian cancer
arena because there was so much need and she helped shape and change the
course of the disease for women diagnosed with oc.
She began by entering
a clinical trial at the NCI where she received a 3 drug cocktail.
Survival for women with advanced ovarian cancer was about 2 years at that
time. While all of the women who were in the trial eventually died from
oc, each of them survived far longer than was thought possible.
was, to quote her "the last one standing". Susan had an initial remission
of 13 years before her oc came back.
Within a year of finishing treatment Susan began mobilizing women with oc.
She was a founding member of the Ovarian Cancer National Alliance as well
as the local gyn advocacy group in the DC area. She served as a member of
the first DCLG panel under Richard Klausner. More recently she has been
the Exec Director of the DC Cancer Consortium, a group devoted to bringing
better cancer care to people in the DC area, many of whom live near some
of the best cancer centers in the country and don't have
She was very proud and happy that a Patient Navigator program has been
rolled out by the Consortium and while battling end stage ovarian cancer
continued to work at the Consortium so she could see this work completed.
Susan Butler died in December 2010
Written by Diane Paul
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