Teens' Issues (Adolescents)





THE SCHWARTZ CENTER ROUNDS

Between Parent and Child: Negotiating Cancer Treatment in Adolescents

Richard T. Penson, Paula K. Rauch, Steve L. McAfee, Barbara J. Cashavelly, Kathy Clair-Hayes, Constance Dahlin, Kara M. Green, Bruce A. Chabner, Thomas J. Lynch, Jr.

Department of Medicine, Division of Hematology-Oncology, Massachusetts General Hospital, Boston, Massachusetts, USA

Correspondence: Richard T. Penson, M.R.C.P., M.D., Instructor in Medicine, Hematology-Oncology, Cox 548, 100 Blossom Street, Boston, Massachusetts 02114-2617, USA. Telephone: 617-726-5867; Fax: 617-724-6898; e-mail: rpenson@partners.org

Shortly before his death in 1995, Kenneth B. Schwartz, a cancer patient at Massachusetts General Hospital, founded the Kenneth B. Schwartz Center.

The Schwartz Center is a non-profit organization dedicated to supporting and advancing compassionate health care delivery, which provides hope to the patient, support to caregivers, and sustenance to the healing process.

The center sponsors the Schwartz Center Rounds, a monthly multidisciplinary forum where caregivers reflect on important psychosocial issues faced by patients, their families, and their caregivers, and gain insight and support from fellow staff members.

Cancer in adolescents presents an extra dynamic of psychosocial complexity.

The case of a 19-year-old woman with acute myelocytic leukemia is discussed. Her disease was refractory to allogeneic transplantation, and she died with severe graft-versus-host disease.

Ms. P and her mother established very different relationships with the team which supported them through the transitions in her care, and Ms. P was able to die at home, with hospice care. The personal connection with the team enabled a degree of positive adjustment through the nightmare of loss.

The epidemiology of cancer in adolescents and paradigms of care are reviewed.

Psychosocial aspects of adolescence, opportunities for personal growth and support, and the challenge of end-of-life care are discussed.

The Oncologist, Vol. 7, No. 2, 154-162, April 2002 2002 AlphaMed Press


Balancing Parent/Child/Healthcare Provider Talks

British Med J, 2/03

Adolescents in Clinical Trials:UK

Eur J Cancer Care, 9/03

Qualitative Evaluation of Adolescent Ca Unit

Euro J Cancer Care, 3/04

Experiences/Aspects of Care for Adolescents w/Cancer
Adolescent Units:The Evidence for Quality Nursing
Young Adults w/Ca & Parents' Interactions

Euro J Cancer Care, 3/04

First UK Professorship in Adolescent Cancer

The Teenage Cancer Trust, UK, 4/04

Meditation Helps Teens Lower Blood Pressure

Am J Hypertension, 4/04

Caffeinated Sodas &  Blood Pressure:Adolescents

Arch Ped Adolesc Med, 5/04

Teenager & Parents Approach to Osteosarcoma and Ukrain

Posted May 2006 by permission

Teens Cancer Group Links

varied

Fertility issues in survivors from adolescent cancers

Cancer Treatment Reviews May 2007

Barriers to fertility preservation among pediatric oncologists
Survival  teenagers & young adults in England, 19792003

British J of Cancer, August 2008 online


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