Living with metastatic breast cancer:
a global patient survey
Musa Mayer, MS, MFA,1 Adrián Huñis, MD,2 Ruth Oratz, MD,3 Cathy Glennon, RN,4
Pat Spicer, LMSW,5 Elyse Caplan, MA,6 and Lesley Fallowfield, DPhil7
1 AdvancedBC.org, New York, NY; 2 University of Buenos Aires School of Medicine, Buenos Aires, Argentina;
3 New York University School of Medicine, New York, NY; 4 International Society of Nurses in Cancer Care/University
of Kansas Hospital, Kansas City, KS; 5 CancerCare of Long Island, New York, NY; 6 Living Beyond Breast Cancer,
Haverford, PA; and 7 Brighton and Sussex Medical School, East Sussex, United Kingdom
Worldwide, one-third of patients who present with early-stage breast cancer will go on to develop metastatic disease.
Despite a serious diagnosis with a grave prognosis, treatment advances have meant that women are living
longer with metastatic breast cancer. Although the clinical aspects of metastatic breast cancer have been
well studied, little is known about the personal, psychosocial, and emotional experiences of women living with
Because early-stage breast cancer is highly visible in the media and is a focus for most patient advocacy
groups, women with metastatic disease feel isolated and alone. This paper presents the results of an international
survey that questioned 1,342 women with metastatic breast cancer from 13 countries.
The survey was designed
to understand the nonmedical attitudes of patients livin
g with metastatic breast cancer, identify perceived gaps in resources available to these patients, and define barriers to clinical trial enrollment and participation.
Volume 7/Number 9 September 2010 COMMUNITY ONCOLOGY
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