Carcinoid Tumors

We just found out about this type of cancer at the June, 2006 ASCO (American Society for Clinical Oncology) meeting.

Here is what the Carcinoid Cancer Awareness Network, Inc. has to say about this type (links below):

"Carcinoid Cancer is listed with the National Organization of Rare Disorders. Because carcinoid cancer has been considered a rare cancer, and due to a lack of public attention, the disease has had a low priority for medical research.

Carcinoid is also regularly overlooked during the diagnostic process. Many carcinoid patients go untreated for years, or are told that they have other problems".

"There are many 20 year survivors around. Current research has uncovered serveral promising treatments. As the medical community AND the general public become more aware of carcinoid cancer, more and quicker diagnoses will occur.


Low blood pressure




Abdominal Pain

Weight Loss

Cardiac Disease

Bowel Obstruction

Marine Phytoplankton

Information, links

Carrie Host - Cancer Patient Tells Her Story - Marine Phytoplankton
European Neuroendocrine Tumor Society

LINK to medical group but has a patient page

North American NeuroEndocrine Society

LINK coming later in October 2006

Small, asymptomatic neuroendocrine pancreatic tumours

J Endocrine-Related Cancer, 12/06

Carcinoid Organizations

Variety of links

Remember we are NOT Doctors and have NO medical training.

This site is like an Encyclopedia - there are many pages, many links on many topics.

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