12/07 This section will soon have comments by a woman whose partner died of cancer. She tells us she sees a need and feels that she has IMPORTANT information to share.

Caregivers do so much, and often risk their own health. We need a plan - how to ask others for help (big and small style, to get respite, and so much more. Ann F.

Family Perspectives of Ovarian Cancer

Betty Ferrell, PhD, FAAN, Kate Ervin, BA, Stephany Smith, BA, Thais Marek, Cindy MelanconRN, MN,

purpose:This qualitative study explored quality of life (QOL) in family caregivers of ovarian cancer patients to better define their needs for support.

description of study:One thousand one hundred pieces of correspondence written by family caregivers of ovarian cancer patients were contributed to the City of Hope investigators by the founder and editor of Conversations!: The International Newsletter for Those Fighting Ovarian Cancer.

The investigators analyzed meaningful comments in the letters using content analysis methods.

results:Comments by family caregivers reflected little concern for their own physical well-being and, instead, focused on the psychological, social, and spiritual aspects of their experiences.

Correspondence on the psychological effects of caregiving demonstrated poor QOL stemming from feelings of lack of control and helplessness.

Social data showed that family caregivers lacked support, were given to feelings of isolation, and experienced considerable anxiety regarding the genetic nature of the disease.

Spiritual well-being was particularly important to caregivers, as they drew strength from their faith and were able to find positive meaning in their experiences.

clinical implications:The study findings revealed that caregivers require additional support from the healthcare community, especially to address disease-specific needs in patients with ovarian cancer. The correspondence demonstrates a need in family caregivers to connect with others fighting the same disease.

This study also identifies the need for support for at-risk women, as well as a continuing need for palliative-care services.

Cancer Practice Volume 10 Issue 6 Page 269 - November 2002

Home Caregivers for Person w/Advanced CA (Australia)

Cancer Nursing, 12/01

Grief & Loss Support Group

WebMD location

Parents of Kids w/Cancer

National Cancer Institute & Center for Advancement of Health

Partnerships Empowering Parents & Proferssionals
Childhood Cancer & Users' Views:Critical Perspective
Immunity/Inflammatory Cytokines:Stress of Parents
Patterns of Change in Marital Relationships:Parents of Kids w/Ca
Prayer, Laughter & Broccoli, BOOK

Author Peter Flierl, MSW writes about being there for his wife w/breast ca

Medicare on Caregiving

LINK to site for info/education

Delayed Hospice Care Increases Depression Of Survivors

Am J Psychiatry, 12/04

Nat'l Institutes of Health Opens Family Lodge

Opened May 2005

Kids Konnected

LINK to org for "kids who have a parent with cancer"

Super Sibs

LINK to organization to serve siblings of children with cancer

Patient Partner Project

LINK to Dave Balch' site with support for the partner/caregiver and more

Share the Care

LINK "How to organize a group to care for someone who is seriously ill"

Well Spouse Organization

LINK: site for partners, caregivers, etc.

Families Facing Cancer

LINK: Emotional and Practical Support for families and caregivers

Turn 2 Turning Aid

LINK: "The Turn2® Turning Aid™ is an innovative new product for turning and positioning patients in bed that enhances quality of care while at the same time helping to reduce risk of injury to both patients and staff".

For Caregivers, whether professional or at home

Remember we are NOT Doctors and have NO medical training.

This site is like an Encyclopedia - there are many pages, many links on many topics.

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